10:20 Speech this morning it was mentioned that Rye was correcting himself on the ipad app proloquo2Go. I have seen him do this before recently, but she recognized it herself.
His stimming increased, but I hadn’t yet gave him his adrenal cortex. That has calmed down a bit.
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My prayer is that you ran across this blog for a divine reason. I have no plans to impress you, just to share what God has led us to and how it is changing our lives.
Don’t have time to read great parenting books, check out Audible. I’ve been using it to listen to some great reads I had put off for lack of having time to hold a book.
We have been learning to use ProLoQuo to go app for my son with Down Syndrome, Apraxia and Autism. Sometimes they have a sale on this app as it is a little pricey. But it’s worth the purchase. I have it on an iPad for school for my son and I also have it installed on my iPhone so we always have an option of communicating.
I recommend watching some you tube videos to better understand how to use it and teach it.
How we started was I programmed a “Help me please folder” and an “About me” folder. We added food, tv shows, common things he asked for help with in that folder. I programmed the food folder to match what he eats. We started by trying to tell what food he wanted. The point was to get him to make requests. So at first I modeled it, I want to eat pizza. Then I would say Riley do you want to eat pizza. And hen I would hand over hand type it for him. Then I would say, let’s say it and tap the top to read the full request.
In speech they would read books, and then go back to the pages to find something on each page. This takes a bit of pre-prep to make photos in a folder to match, but then hey started using the preprogrammed categories. Sometimes we have to add things to complete the thought. Any area I want him to be able to describe I link to the existing older of describing words and we can add color, numbers or description to any topic we commonly use.
It’s exciting, in about a year (including chelation) Riley is seeing the need to use the “owl to talk” as we say it. He will even often sign or try to speak sounds as he does it, but he beams that he can get his point across with ease. Just like with sign language he is much less frustrated.
Sharing is the best way to learn and retain, don’t forget to like our page, follow us and share the information with someone that it may help. Please use our links to find the products and shop our prices, I’m taking the time to look stuff up and present it you to save you time and hopefully money, by clicking on affiliate shopping links you can help us with savings or a slight commission (no extra is added, your price would be the same either way).
My prayer is that you ran across this blog for a divine reason. I have no plans to impress you, just to share what God has led us to and how it is changing our lives.
Since we moved in our home, 2 of our closets had an odor to them cause they stayed closed up. Every coat or piece of sports gear stored there resembled the odor. I had tried other air fresheners in the closets before and none lasted.
I tried bags like this, (a different brand) that was much more pricey and they worked great to eliminate the odor. You just recharge them in direct sunlight about once a month. So I plan to order some for our camper and this is the brand I’m going for this time. The packaging looks exact, just one logo is different.
I put one in my car also, no more stinky car even when sports gear or barn boots are left in it. I’m really happy with the bamboo charcoal.
Please read with Grace: These Chelation Round Updates are done live. They may be incomplete and unedited, so to avoid forgetting anything, they are typed up for speedily for memory sake.
still grinding severely, beyond what supplements are touching
This is huge. He eats biscuits for breakfast most every morning. This morning he held and ate his own Jelly biscuit. HUGE for parents that have too stand there and fed him each bite. Let me explain, it’s not that he won’t hold any of his own foods for self feeding it was just jelly biscuits. He would hold other biscuits, even would hold jelly sandwiches.
We got back from our camping trip on Sunday and we started the Round about 4:30. Another of the most noticeable differences is Riley has dropped his sorting basket. Normally, his daily routine would be to sort a collection of stuff in a basket. He would take each item and put in his basket with a purposive intent (perhaps counting, naming or characteristic sorting) dump them and do it again. He was very particular and didn’t like anyone to pickup or mess with his chosen sorting items. This has been his persistent play method for years and a continual mess on the floors. While we were camping he didn’t do it or his ritual to collect things to sort. Since we have been home he’s not sorted once that I can recall. Matter of fact we get so used to his mess we have left it all out and he’s not touched it. He is still dangling things and sticks with his elephant, which has lost its worn nose or a monkey from his prayer mother at church.
He has seemed to regress in potty training. He is also having accidents more than he was off round, which isn’t uncommon cause the ALA is a diuretic, which is helpful in the removal of metals. I have been trying to leave him in underwear more and he’s not minding to go and not indicate. But for a period he would indicate he needed to go upon asking or would come tell me after being wet/soiled. So in that area we have seen regression, but any change still indicates metals moving and regression tend to indicate greater gains on the way.
He is licking more, holding the back side of his hand up to his mouth more, that started becoming noticeable back
His OT and speech were noticeably different this week on Round. He was more contrary and wasn’t easily coerced to compliance of tasks. He even lost his privilege to swing at OT due to lack of cooperation. Still kicking and pushing resistance to a task that seems to hard. Perhaps it’s like the boy with Autism that got an ACC at 12 said, they had me doing things that were to simple and boring that dumbed down. He was highly intelligent, just unable to speak with Apraxia. The device unlocked his works and he was now a college student. One thing I could imagine is they are working on instructing during a child phase of independence and he is wanting more decisions. He hasn’t ever had his ACC device incorporated into his therapy sessions with PT/OT. He is less resistant to hold pens for writing position.
He’s been sleeping through the night again for about the past week. I would wake him for nighttime doses with greater difficulty, but he has been sleeping without the 3-4am wakings and restlessness. Could be that we finally got candida under control. It could also be he was having more difficulty with mucus formation and was resisting good head position while sleeping. If I can get him placed on his right side with chin tilted, most of that seems to stop and he breathes better with less snoring or apnea gap-breathing.
Off Round Gains and Regression Reports:
First morning off round, right from the start he had an accident in his diaper as he is stirring but not yet awakens.
He had a typical horse therapy class, didn’t really have much lack of cooperation with the walk-on.
I would say grinding didn’t cease, but lessened during the extended off round.
His sleeping through the night streak (25 and 26th) become disturbed again.
This past round Rye had frequently turned down meals more unusual.
He had an less than cooperative PT/OT on Monday but he was able to follow directions well when we had him motivated. We had a makeup from last week for a PT on Tuesday, he did amazing following directions and was more cooperative than usual. She changed it up to allow him to go outside and do a water activity and did outside steps. She commented that he did great (which is better than usual).
Sharing is the best way to learn and retain, don’t forget to like our page, follow us and share the information with someone that it may help. Please use our links to find the products and shop our prices, I’m taking the time to look stuff up and present it you to save you time and hopefully money, by clicking on affiliate shopping links you can help us with savings or a slight commission (no extra cost for you, your price would be the same either way).
My prayer is that you ran across this blog for a divine reason. I have no plans to impress you, just to share what God has led us to and how it is changing our lives.
6/9/19 Chelation – LIVE Updating (I have been handwriting notes and putting notes in my phone, but have slacked on making online posts about rounds. I’ll try and get those updated and caught up. We kinda hit a plateau, still getting favorable results but increased ALA and DMSA and seeing more gains.)
Please read with Grace: These Chelation Round Updates are done live. They may be incomplete and unedited, so to avoid forgetting anything, they are typed up for speedily for memory sake.
After watching some new resources and reading a parent’s recovery testimony with ACC protocol with her child, I decided to raise the ALA dose this time by an additional 5mg.
Rye climbed up on the chiropractor table willingly, laid in position and got adjusted. He has been willing since the fall, after years of seeing me do it. He got up one day and laid on the table after my adjustments and we have been doing them ever since.
First thing Rye noticed a pair of scales at the clinic and wanted to weigh himself, weighing in at 60lbs… and my back doesn’t deny that. He had a more difficult day at PT/OT. First, the weather was very rainy. Secondly, being on round he may have not slept as sound. He seemed to be fighting tired and had more aggressive behavior than they usually experience with him. Kicking, swatting or just down right laying down in protest of cooperation. But despite. Over the past few weeks when I mentioned doing the checklist with him (about 8 sessions prior) he is almost making his own check marks and very willing to follow the list and check off accomplishments.
Interestingly enough, Rye has slept through the nights with out his typical 3-4am waking. His snoring has lessened these past two nights, but over the past 2-3 weeks his snoring and apnea seemed to be flaring. Despite no other symptoms, he would almost appear to get stuffy nosed at night and would have sticky mucus in his nose. I would flush his nose, but this continued a few weeks. At first onset we had a chiro adjustment and it didn’t fully eliminate symptoms like usual. After our adjustment yesterday I note that there seemed to be improvement.
Had a mishap with my timer during a night waking. Round ended prematurely.
Off Round Gains and Regression Reports:
Rye didn’t have his typical regression this time going off round. He did great in speech classes with Mrs. Debbie and didn’t seem to be slowed down any. He came out telling me, “I am happy.” On Wednesday, they said he was on task with photo flash cards they were using.
He had a great session with horse therapy, very focused and involved.
Rye was requesting food and movies/tv shows with ease all week, using categories and folder paths appropriately in ProLoQuo2Go. He would often request without prompt. He still indicated a couple times needing to potty or that he had had an accident.
His grinding is still severe. Even with an increased dose of calcium, which stopped it practically day 1.
We went to Dollywood, in Pigeon Forge, TN for a weekend of camping. Rye was ready to go camping from the moment we pulled up the camper. He loves the DVDs in the camper and remembered his favorites. He would get them out one by one instead of lining them up like years past. That dropped last year with chelation. We showed him how to put the movies back in cases and upon promoting he would do that. He tried to work the DVD player and remembered the eject button vividly from last year’s camping season. He rode his tag-a-long bicycle with ease this season and practically tried to pedal. We needed to raise the seat and I think he coulda done it if the leg position was right. (That was a great workaround, if you are looking for a special needs option for biking, take a look at this deal.) He didn’t want to get off. What was different this year, vs last year is he was listening in on conversation more and if his brother asked to ride his bicycle, Rye would go to the door and ask to go out and would go to the bicycle and make noises while pointing (didn’t have the ACC devices ready). He would go get his own snacks out of the pantry cabinet, like he does at home.
He stayed in underwear all evening and didn’t have an accident till later in the day. He had just been taken to potty so I mark it up to being late. He went to bed in just underwear with no nighttime accident, I checked him as I got up to give doses. But when he woke, he came out and passed me in the bathroom. When I got to him he had laid down in his fav rocker and had an accident. But after drinking through the night following doses, I expect he had to go suddenly and forgot he was in underwear. When he first wakes, he can never go immediately, takes him 20-30 mins sometimes.
During the time I had not been updating posts well, Rye had become obsessed with a couple of his friends school apps. Endless wordplay and endless numbers. He’s gotten pretty good at them and grown less frustrated even when the device controls order (he often wants his preference of order in letters) Over the past month to two, Rye has become interested in an older iPad game Inside Out. It’s a logic style game that matches memory bubbles. When the colors match by 3 or more they fall. Perhaps this is what he has replaced his sorting game with, cause he plays it frequently. But it started out frustrating him greatly, but as we would ride in the car, Cade would play it and hold it where Riley could watch routinely. Well recently, Riley has been playing it and Cade even noticed one day that he won a level… a level Cade didn’t win for him to advance him. He now plays this game intently… he aims and groups the colors. But the best part about the aiming is works with angles, you have to sometimes angle it off the wall to get it to the matching area. He is doing it and winning regularly. Sometimes using unexpected logic by shooting off a color that doesn’t have a match group. Or using a special memory to cause a different reaction. I like the app cause without knowing he is using a isolated finger position for extended periods of time, and dominates right handed. It’s exciting to see how he knows to maneuver the memories on his own. He still loves the word games and plays them often and it’s not unusual for him to still make the apps that talk -stutter.
Sharing is the best way to learn and retain, don’t forget to like our page, follow us and share the information with someone that it may help. Please use our links to find the products and shop our prices, I’m taking the time to look stuff up and present it you to save you time and hopefully money, by clicking on affiliate shopping links you can help us with savings or a slight commission (no extra cost for you, your price would be the same either way).
My prayer is that you ran across this blog for a divine reason. I have no plans to impress you, just to share what God has led us to and how it is changing our lives.
We have always grown up grilling with Aluminum Foil. Grilled food tastes best in our family. It was very convenient to keep the grill cleaner. But after reading this article I decided to get serious about dropping Aluminum Foil entirely. Keeping in mind my youngest son has Down Syndrome this is some information I found in 2017 related to Aluminum…
Here are two quotes from this article that make perfect connections to me. People with DS have a permeable blood brain barrier, caused by over expression of MicroRNA 155. This increases the potential for Aluminium to accumulate in the brain and cause toxicity. and Children with DS have decreased detoxification capacity for Mercury because of genetic and biochemical imbalances which reduce their ability to excrete Mercury 6. They are particularly vulnerable to mercury intoxication which causes damage to the developing central nervous system, as well as kidney and lung damage. Sources of toxic mercury exposure include fish, vaccine preservative thimerosal, inhalation of mercury vapour, skin creams, teething powders and dental amalgams 5.
Restaurants wrap food in AF to help maintain heat. Food is purchased in aluminum cans for longer storage. AF is considered a food safe product, right? I’ve heard the dangers of using aluminum before, but let’s face it habit changes can be so intimidating. That’s why I like to make change in small increments, until they become new habits. I needed a plan to break old habits of convenience and quick, since we already deal with heavy metal toxicity and Autism. (My SOZO reports showed I have HiGH levels of Aluminum.)
Conveniences over Health? A few years ago, I converted over to cooking solely with cast iron or stainless steel to avoid the dangers of non-stick surfaces that are considered cancer causing. Since we love the flavors of skillet cooked foods, baking has almost become rare for our palettes. Buying and keeping a stock of AF is a minor investment. Having a reusable solution will bring cost savings into the benefits along with improved health. Another way we cut costs of AF is in storage using glass containers with sealable lids.
I put some thought to it and ordered 2 grill plates similar to these, online for our grill at home and grill in the camper. It should help contain the grease for easy cleanup while keeping a great seasoned flavor while grilling.
Check your grill size and see if the smaller reversible grill plate is best for you. I chose reversible cause it could be versatile for breakfast foods. These can even be used on the gas stovetop burners in campers and RVs.
Cleanup is fairly easy, and works best while the cast iron is still warm. If you are new to cast iron, you may need a brush or scraper, that may be another purchase consideration.
No more aluminum foil when cooking out for us-problem solved!
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